The Days Before Christmas | December 2021
Five Days Before Christmas - Ocrelizumab Infusion Day 2.
Dec. 20, 2021
Today is round 2 of my new DMT; My first treatment went pretty well. You can read about it here (link). The day was much more relaxed that last time. I think that I was less nervous because I knew what to expect. I am doing Ocrelizumab infusions, once I am through this dose will be every 6 months. My next dose will be 2 days into summer vacation or during finals depending on how snow days go this winter. My newly scheduled next appointment is exactly 26 weeks from today. Which I guess is good for me and maybe bad for my co-workers.
During my last infusion I got a itchy throat and we had to stop. During the hold off I was not given more Benadryl, the push was saline and Famotidine.
* This time the infusion team made a few changes to my protocol.
- PREP: Saline with Diphenhydramine, Famotidine, & Methylprednisolone (Benadryl, Pepcid, Solu-Medrol)
- PREP: Oral Fexofenadine & Acetaminophen (Allegra, Tylenol)
- TREATMENT: Ocrelizumab 300mg/250ml (Ocrevus second half dose)
I was VERY sleepy during the infusion. I believe more sleepy than last time. We did not have to stop, my mouth and throat did not react.
Since we didn't have to stop I was able to pick up the Mini at the same time as after my last infusion, but I started an hour later.
Because of all of the allergy medication, after finishing my sandwich, I slept from about 1:30 pm. to a little after 4 p.m.
I do have a kicking head ache, and I am having a hard time sleeping now that its actually time for bed. I am no doctor, but I think a 3 hour nap and steroids could be the culprit.
Here is the obligatory "Bathroom Selfie Shot"
Dec. 21, 2021
Well today is not going as planned.
#1 Got a call from the Mini's school - she was in the nurse's office and needed to be picked up. This is the second week in a row that she was getting sent home sick so I wasn't going to let it slide like last week.
I immediately called Dr. B and found out that there were no available sick appointments left today. I reluctantly took a 10:30 a.m. appointment for tomorrow. I then thought about it, called her dad and told him to pick her up and bring her to urgent care. I can't take extra time off from work and I can't go to work tomorrow, not knowing if she has the flu, strep or COVID. My immune system is a bit stunted from the steroids and don't want to take any chances.
#2 My body was really bad today while at work. I didn't sleep well last night so I am over tired and was in a terrible mood after finding out that the Mini might be sick.
Dec. 22, 2021
I am in bad shape. We are only a couple days from break and I am a mess. The stress of yesterday, having the Mini be sick, the baby daddy at my house, all of it brought my stress level way too high. I am paying for it today. Good news is that everything was negative and we will start vacation with a mostly clean bill of health. The mostly is that her ER doctor thinks she has an URI known as "The Common Cold"