I Hate Supermarkets. There I said it. I hate everything about them. They are too bright, there is too much walking, lately they don't have what I came for.
My Point of View... as a single parent with a Multiple Sclerosis.
|DISCLAIMER: I am not a trained health care professional. I choose to share my journey as a single parent with MS.
The information in my writing it MY experience and should not be taken as medical advice.
Kids can be a pain in the neck, as the saying goes. One thing that never really impacted me prior to this exacerbation was pain.
I have lots of different kinds of pain. The pain in my legs, hands and neck are the areas that most impact my life.
In the last couple of months, as the exacerbation wears on, the pain is getting more pronounced.
I have been struggling finding care for the Mini in the morning since last July when I started looking. I have reposted the job regularly and shared it in a range of places on social media. I thought that I had described the job well. Turns out I didn't and over the last couple day people decided to start telling me.
The Wednesday before Thanksgiving is pretty special. Each year (minus 2020) my school cooks a full Thanksgiving dinner for the students. We even invite people from the larger school community. It's a great day for our community; for many of our students this might be the only full Thanksgiving meal they get. This year we even had a student bring his father so that he could also take part in the Thanksgiving celebration.
November 5, 2021
In September the Mini went to kindergarten. I was piecing together morning care so I could work. The schedule was always changing as I went to doctor appointments and treatment. It has not been a smooth introduction to big girl school.
Oct 23, 2021
To say that Halloween is one of my favorite holidays would be an understatement. So I booked The Mini into an arts & craft event in a neighboring town. Traffic was unbearable getting there. Once I got closer to the town center I saw that there was a huge Fall Festival happening. And so did The Mini.
Oct. 15-18, 2021
Handicap placard… well I reached out to my healthcare team again. I wanted some clarification about handicap placards.
"But you can walk!?! You paint houses, and lay flooring! You are not Handicapped! You are the kind of person who ruins a well intentioned system."
Well the plan is to start a new medication this fall. Hopefully before Christmas. If all goes well with insurance maybe even before Thanksgiving. I will also be taking part in a study. That means that I will not be taking any medications besides over the counter options. No problem!
Aug 16, 2021
August is turning out a little bit more challenging that I would have liked. In general heat makes my Multiple Sclerosis worse, in general having any severe infection makes my MS worse.
Then I wasn’t feeling too great one day. The mini was with her dad, and I decided to try to relax after getting home from the Fairy Cottage.